Knowledge, explanatory models of epilepsy and adherence to anti-epileptic drugs among the young people living with epilepsy in Uganda

Abstract

This study sought to examine the knowledge, explanatory models of epilepsy and adherence to anti-epileptic drugs (AEDs) among the Young People Living with Epilepsy (PLWE) in Uganda. Therefore, an exploratory study was carried out on Ugandan young PLWE. Qualitative research design was followed specifically using a semi-structured interview guide administered on a one-to-one basis to all the respondents. The study involved 20 (10 males and 10 females) young (12–26-year-olds) people living with epilepsy and have been on treatment with anti-epileptic medicines for at least three months. The findings indicated that majority of the young people living with epilepsy had little or no prior knowledge about epilepsy disease, they were influenced by what the people, especially adults around them said and had no idea about what treatment they needed to get. Their adherence to the AEDs was low. Recommendations are provided at the end of the study based on the observations and findings.